World Rare Disease Day marked an important opportunity to reflect on the realities faced by people living with rare diseases, as well as the families, caregivers and organisations that support them every day.
On this occasion, WinPower announced its support to the Associação Portuguesa de Prader-Willi (APPW), an organisation dedicated to supporting people living with Prader-Willi Syndrome and their families in Portugal.
Prader-Willi Syndrome is a rare genetic condition that requires continuous medical follow-up, behavioural support and highly structured daily routines throughout life. Its impact extends beyond the individual, affecting families, caregivers and those responsible for ensuring continuity, stability and informed care.
The Associação Portuguesa de Prader-Willi plays an important role in this context, providing specialised support, guidance, awareness-raising initiatives and collaboration with healthcare and social institutions. Through its work, the association helps ensure that people affected by Prader-Willi Syndrome are not left without structure, knowledge or representation.
Rare diseases often require responses that go beyond standard frameworks. They demand continuity, expertise, advocacy and sustained support from organisations capable of addressing specific and complex needs over time.
At WinPower, social responsibility is understood as a practical and consistent commitment. Supporting organisations that operate with real impact is part of this responsibility and reflects the company’s values of rigour, long-term thinking and care for the wider community.
WinPower’s support to the Associação Portuguesa de Prader-Willi reinforces this approach, contributing to work that promotes inclusion, dignity and informed care.
Beyond awareness days, the work continues. And so should the support.
